B

B

Thursday, July 8, 2010

1,2,3,4,5 of them

the 1st seizure we experienced was with our 2nd child
she was 12 months old and had a febrile seizure(meaning with temp)
I was nursing her
she had not been sick
I looked down and she was purple
it was one of the scariest times in my life
I told my husband to call 911
she was limp and purple
she was not jerking or moving at all
I thought she was dying
it was just a seizure
our 1st bout with a huge part of our life
our son at 13 months had a seizure lasting over 10 minutes
a temp accompanied it classifying it as a febrile seizure
we were much more calm this time
we received medical attention, checked out fine, probably virus
we assumed it would be the same as our daughter
one seizure, we had our scare, and that was it nothing more
until he had another seizure 4 weeks later
and another seizure 5 weeks later
and another seizure 4 weeks later
and more than one seizure 6 weeks later
this continued for 2 1/2 years
seizures every 4-6 weeks
running temperatures up to 107 degrees (yes 107, not a typo)
it was not just 1 or 2 any more it was 100's of seizures in a 2-3 day span
we were blest with a technique that allowed his body to heal itself
at the age of 4 he was seizure and temp free
our next child had seizures at night
she would tell us the sharks were biting her
waking up with uncontrollable fear
we did not understand this
until that dreadful day
she had a seizure we witnessed
and then told us the sharks were biting her
we had our suspicions
and they were accurate
this lasted about a year and a half
our next daughter had her first seizure at 13 months
lasting over 3 hours
we were extremely frightened
realizing even medical personnel did not know what to do
she was diagnosed with epilepsy at 18 months
she has fought many seizures every week
sometimes every day
she has seizures even though she is on a seizure medicine
this medicine tries to keep the seizures at bay
but takes our precious child from our realm
she is 'zombified' on these meds
our next son had a febrile seizure at about 1 1/2 yrs old
now he wakes up at night screaming
telling us his bed is biting him
afraid to sleep in his room
we fear what might be
we do not know
seizures are not hereditary
but the tendency to have them if one family does is higher
and even higher if more than one member has a seizure
it is very hard to surrender your child and trust
to say I am not it control and I can not control this
we all want the best for our children
it is disheartening not to be able to always be that for them

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